Penyuluhan Osteoporosis dalam Upaya Pencegahan Komplikasi Tulang pada Pasien Talasemia Mayor di Kabupaten Rembang dan Grobogan

Nyoman Suci Widyastiti, Dwi Retnoningrum, Ariosta Ariosta, Yetty Movieta Nency, Dwi Ngestiningsih, Rina Partiwi, Muflihatul Muniroh, Elsa Naviati, Rizky Dyas Afriana

Abstract


Background Osteoporosis is a complication that often occurs in thalassemia major patients. This complication is still not widely known. This community service program aims to increase the knowledge of families of major thalassemia patients in Rembang Regency and Grobogan Regency regarding the complications of osteoporosis in thalassemia patients. Methods Education about osteoporosis, risk of osteoporosis in thalassemia patients, and prevention of osteoporosis. Extension method with presentation and discussion. The activity was attended by 20 thalassemia families in the Rembang Regency and 21 families of thalassemia patients in the Grobogan Regency. Before and after counseling, pretest and posttest questionnaires were completed to measure the knowledge of families of thalassemia major patients regarding bone complications in thalassemia patients. Results and Discussion Nearly half (46.34%) of respondents did not know the risk of osteoporosis in thalassemia. After counseling, 82.93% of respondents knew the risk of osteoporosis in thalassemia, but there were still 17.07% of respondents who still did not know this risk. Conclusion There is a significant increase in family knowledge of thalassemia major patients about the risk of osteoporosis in thalassemia. Further efforts to increase knowledge are needed with written information media (leaflets) given to families of thalassemia major patients


Keywords


pengetahuan, penyuluhan, talasemia, osteoporosis

Full Text:

PDF

References


Cita, V. S., Widyastiti, N. S., Widyaningrum, D., & Nency, Y. M. (2019). Correlation between sTfR, 25-hydroxyvitamin D and N-mid-Osteocalcin Level among Multiple Blood Transfussion Thalassemic Patients.

Gaudio, A., Morabito, N., Catalano, A., Rapisarda, R., Xourafa, A., & Lasco, A. (2019). Pathogenesis of Thalassemia Major-associated Osteoporosis: A Review with Insights from Clinical Experience. Journal of Clinical Research in Pediatric Endocrinology, 11(2), 110–117. https://doi.org/10.4274/jcrpe.galenos.2018.2018.0074

Jakarta Globe. (2012). Indonesia at High Risk of Genetic Disease That Can Lead to Anemia: Health Official.

Lee, S. L. K., Wong, R. S. M., Li, C. K., & Leung, W. K. (2022). Prevalence and risk factors of fractures in transfusion dependent thalassemia – A Hong Kong Chinese population cohort. In Endocrinology, Diabetes and Metabolism. https://doi.org/10.1002/edm2.340

Manolopoulos, P. P., Lavranos, G., Mamais, I., Angouridis, A., Giannakou, K., & Johnson, E. O. (2021). Vitamin D and bone health status in beta thalassemia patients-systematic review. Osteoporosis International : A Journal Established as Result of Cooperation between the European Foundation for Osteoporosis and the National Osteoporosis Foundation of the USA, 32(6), 1031–1040. https://doi.org/10.1007/s00198-021-05821-w

Modell, B., & Matthew, D. (2011). WHO Global epidemiology of haemoglobin disorders and derived service indicators. In Who. Bulletin of the World Health Organization.

RSHS. (2014). WHO: 6-10% Masyarakat Indonesia Memiliki Keturunan Thalassemia. Buletin RSHS.

Smith, Y. (2015). Thalassemia Prevalence. In News Medical Life Scinces & Medicine.

Wong, P., Fuller, P. J., Gillespie, M. T., & Milat, F. (2016). Bone Disease in Thalassemia: A Molecular and Clinical Overview. Endocrine Reviews, 37(4), 320–346. https://doi.org/10.1210/er.2015-1105

Yayasan Thalassaemia Indonesia. (2016). Tentang POPTI. Yayasan Thalassaemia Indonesia.




DOI: https://doi.org/10.34001/jdc.v7i3.3577

Article Metrics

Abstract view : 72 times
PDF - 58 times

Refbacks

  • There are currently no refbacks.


Creative Commons License
This work is licensed under a Creative Commons Attribution-ShareAlike 4.0 International License.

We are Proud Member of Asosiasi Jurnal Pengabdian Kepada Masyarakat
AJPKM


Web
Analytics Made Easy - StatCounter

View My Stats

Free counters!

Creative Commons License
Journal of Dedicators Community is licensed under a Creative Commons Attribution-ShareAlike 4.0 International License.

Currently this Journal is Indexed by

JournalStories Main logo

7 moraref1 Google Scholar3 Garuda4 Onsesearch5 BASe7 moraref